Posts Tagged ‘doctors

13
Nov
19

Doctor Drama

Nothing much to report today; work continues on Chrysanthemum Graves, though at a snail’s pace. I think I’ll have a chunk I feel like sharing tomorrow, or maybe Friday, so if you’re into that sort of thing, feel free to check back then.

Today is a medical day, though. Three different doctors in two different cities who are going to poke and prod me and likely leave me exactly as I entered with the exception of less room on the credit card after paying the three different $80 co-pays. Getting really sick of going to these. But if I don’t go, my employer and the folks at disability assume “oh, he’s fine now, no need to worry.” Never mind the back pay they should have dealt out months ago, but they’ll definitely put a hold on anything forthcoming. So I keep going to the doctors, who keep telling me the same thing, and they keep dragging their heels.

I am so utterly sick of dealing with medical personnel and all the associated extensions it requires. This should be very simple. Send one human with a brain to my house and watch me try to do chores for an hour or two. Do a two-hour phone call. Discover “wow, he’s fucked up!” Sign off on form that says “Wow, he’s fucked up!” Send a second person to echo that sentiment. Be done.

But no. Six doctors, a year, and having to call every single day because they can’t be bothered or trusted to return my calls or call me back. The latest on that one is my employer called me yesterday to ask if I had my original rejection letter. This is the first I’ve heard from them since two weeks ago when I finally got through to a third-tier supervisor and manually sent all the info to him. I told them “Um. No. I’ve had to move, and I have roughly a crate’s worth of medical records, so I’m not sure where that would be at the moment.” They inform me they’re going to have to pull it from their records, then.

They’re damn fast about finding paperwork when it’s something that supports them telling me to go pound sand, but apparently, it’ll take them a week to find a document they sent to me, that should be in my damn file. Ugh.

Anyway. Off to the doctor’s. Send chicken. Or drug money. If you feel like doing either, you can stop by my Patreon or GoFundMe. Everything helps.

Until next time, folks.

KA Spiral no signature

 

25
Oct
19

Doctors are Crazy

It will never cease to amaze me the amount of paper and time doctors can waste. I think we could make a serious dent in the paper waste industry if we cut some of that out.

Nine months and six doctors later, I’m officially considered broken almost beyond repair. The last report on this took 38 pages of single-space small type that all basically says “Failed, failed, failed, failed, failed, fainted, failed, fainted, had to medicate, failed, failed” ad nauseum. Oh well.

Nothing else to report today. Still mourning the loss of manuscripts from the other day, and after another 3 hours at the doctor’s, I’m wiped out. Until next time.

02
Oct
19

“Do you have an appointment?”

That’s a phrase I’m getting really sick of hearing. The answer is generally “no, because that’s what I’m calling to schedule.” The scheduler will then inform me that they have nothing open until March or some other ridiculous timeframe, and frequently add that “they don’t schedule that far out, so call when it’s closer to that time.”

Here’s the situation: I haven’t been able to work for almost a year. I’m on medical leave because my GP at least gave me a note for that, but my work’s disability folks and the SSA don’t think his word is sufficient for any kind of payout, temporary or otherwise. So I got a referral to a pulmonologist. He wanted to cut on me, swapped one med, and then couldn’t be bothered to see me for three month periods. He wouldn’t fill out any disability paperwork because he didn’t feel he had enough knowledge of my case, but couldn’t be bothered to see me in anything resembling a timely fashion so he could learn about it.

The local physical therapy folks don’t do the tests that are apparently required to show that I can’t breathe or move around well enough to sustain activity for 8 hour periods. So they referred me to someone else, who couldn’t see me for two months and wanted an $800 deposit to do the tests. That’s after insurance. Then they turned around and said they don’t do the tests I need, I need to talk to someone else.

So I get a new pulmonologist. She’s on the ball. She sees me two days after I call her, plays roulette with the meds, orders referrals to two places that will do the tests I need, schedules to see me again in two weeks, actually acts like she cares. Her documentation isn’t sufficient for that the disability/SSA folks need, either.

Call one of the places to schedule, they say they didn’t get the referral. Call the pulmonologist, she confirms she sent it, confirms all the info. Call back the PT place, they say “We have that. We’re waiting for insurance to confirm. Call back in two weeks.”

Call the other place – and apparently, I need both – and get danced with for three weeks with them before they finally find a “possible” opening in December. I have to be in Portland (which will be a 2 hour drive for me), skip my meds, no eating, no drinking anything but water for 24 hours prior and be prepared to spend six hours being subjected to strenuous physical activity to see how much it takes to break me… on a “possibility.” They can’t guarantee they can see me that day, but I need to be there in case they can. Otherwise, I’m out of luck until March.

Still waiting to hear about the first place. Disability doesn’t care; they’re of the opinion that “you’ve been messed up for this long, someone should be able to sign off on it.” You’d think so, but even having them on the line with the scheduling folks doesn’t change their minds or at least give me a grace period.

I’m not sitting here staring at the walls and doing nothing. I’m stuck at the mercy of the medical system. I spend hours on the road, shuttling between Salem, Albany, Corvallis and Portland and paying out the ass at every stop so they can tell me to wait longer or talk to someone else, and the net result overall is most of them want to cut on me (even though none of them will sign off and say “he’s broken, we want to chop him up and try to fix him, but no guarantees,” in a goddamn state where you can skip your vaccines because little Timmy doesn’t do shots on a day that ends in “Y” and where potheads and meth addicts can get treatment for free and immediately for problems of their own manufacture.)

It’s exhausting. And expensive. And my insurance is about to be canceled, my credit is completely shot, I’ve pawned everything I own that has any value (unless I really want the $20 I’ve been offered for my PS4, which will buy me some Popeye’s and refill my antidepressants, but not much else.) And I am just so done with all of it.

I don’t know why I keep trying; it seems like everything these days is rigged against you when you try to follow the rules and do things the right way. If you want to play lets-pretend, the identity game, or ignore law and order, you get a lot farther it seems like.

Anyway. Back to waiting on hold. Sorry for the depressing post. If you can help keep me afloat while the doctors sort it out, it’d be appreciated; I have a Patreon as well as a GoFundMe. If you can drop a dime or even just share the links around, it’d be super helpful.

As I’m fond of saying lately: Hold the thoughts and prayers. Send chicken. Popeye’s #3, Spicy with Coke and Mashed Potatoes.

KA Spiral no signature

20
Sep
19

Sick and tired

…of being sick and tired. Not leaving the house except for doctor visits. Haunting the house more than living in it, drifting around the living room and attempting to move as little as possible. Having the will to do plenty of things but not the ability or resources.

It’s bloody miserable. Today is just worse than usual, as I get to be poked and prodded and loaded into a tumble-dry coffin and forced to wheeze out my tidal breath until I almost faint and be pushed around in a wheelchair from one end of the medical campus to the other. This has been going on for the last 3 hours, and will continue for at least another three.

Pretty sure there’s not going to be anything done on Black Yard or “Dr. Gale,” as I already just want to curl up and die, so I can’t imagine it’ll be any better when they finally decide to let me go.

Stupid thing is this all is probably pointless. They’re just running up the bill because they can, at this point, and it’s not helping my state, t mood, or my other bills. Kind of makes me wonder why I keep going.

Oh well. Hope everyone else is doing alright today. If anyone sees this, please skip thoughts and prayers and send chicken. (I’ve decided that’s my new catchphrase. Thoughts and prayers are, of course, appreciated. But nothing beats a Popeye’s spicy #4 with mashed potatoes, am I right?)

22
Aug
19

Doctors are Evil

I am wiped the hell out after today’s doctoral adventures, so this will be short and bitchy.

  • I just want to say: it is ridiculous that I have to play pinball with five different doctors, all of whom are pointing fingers at each other for who needs to fill out paperwork so my employer knows I’m borked and they’re trying to fix me. On top of spending all day without my meds or eating and being subjected to spirometry, which is a miserable experience as I’m sure anyone who’s dealt with it knows. CAT scan and EEG next week. Hooray.
  • Anyway. Sorry for nothing exciting today. Hope everyone is well.
  • 16
    Feb
    18

    Doctors are Dumb

    I’m not one of the people who claim doctors are in business to keep you sick so they can keep throwing new drugs and treatments at you… but I do think they’re dumb when it comes to prescriptions.

    How? Because for those of us who have chronic health problems or recurring issues with illness, we frequently become intimately familiar with what does and doesn’t work, what medications they are prescribed for what symptoms, and what their reactions to those meds are. All of this information is frequently tossed out by doctors, especially when you have to change primary care physicians. A lot of them just take what you have to say as anecdotal at best, and do what they’re going to do. Then you get to come back after you do it their way and are still ill or suffering, explain it to them all over again so they can prescribe something else. Sometimes you’ll have to repeat this two or three times before they finally give you the drugs that you knew would have worked the first time.

    Now, if they’re tinkering because there are other side effects at work, or because some new medication has come on the scene, that’s fine. That makes sense. But when they’re prescribing very basic painkillers or antibiotics which haven’t changed significantly in years, why?

    Had this experience recently. They insisted on giving me some antibiotic ending in -mycin. I forget which one. They further insisted on giving me Norco. I asked if there was a reason they didn’t give me plain old penicillin or amoxicillin, they said they preferred to try the mycin types first. Informed them that Norco tends to make me violently nauseous and screw up my sleep schedule, they offered to switch it to Oxycodone or paracematol, both of which I noted also cause nausea. They basically said, “play through the pain.” (Further, we started at jumped-up Tylenol, then went straight to Oxy? Jesus, no wonder there’s an opiate problem…).

    What happens? Two days later, the infection’s not going away, the pain is getting worse, and I’ve been vomiting and suffering diarrhea non-stop. More than most of you wanted to know, I’m sure, but oh well. I’m cranky and would rather be working or playing Bayonetta 2.

    So I call to inform the doctor of this, know what he does? Gives me a prescription for amoxicillin and Vicodin. You know. The things I told him he should probably prescribe in the first place. End result? I’m tired as hell (mixing paracematol and Vicodin and two kinds of antibiotic’ll do that to you), but I feel a whole lot better. After I sleep around the clock and fully migrate to the other meds, I may even feel human again.

    Moral of the story? Doctors are dumb sometimes. But I’m still glad we have them because otherwise, I’d be a wheezing pile of psychotic rage and depression unable to leave the bedroom most days. Anyway. Until next time, folks.

    KA Spiral no signature




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